Feeling a bit better now…

I spoke to Dom about how bad I have (or haven’t) been feeling, he seemed concerned but he has a lot on his plate already. After some thought he said I need to take responsibility for helping myself, the internet is here, read up on it, find things that will help me. He is of course right. I can’t be relying on him to do all the work for me.

So I have a kind of plan to try and dig myself out of this rut. It started with taking advice from the internet. It’s nighttime so I put my pyjamas on, wrapped up in my comfy dressing gown, and discovered the caffeine free drink Rooibos which is a type of tea. I’ve been drinking it nonstop for hours. I feel like it’s slowly thawing my frozen core and making my tummy happy. I can’t drink it forever… or maybe I can! But I feel a bit better anyway.

What’s wrong with me?

I’m broken. I’ve noticed it more today than lately. I feel blank. Nothing. I’m empty. Dead inside. I don’t seem to get pleasure anymore. I’m missing happiness. I keep trying to fill myself with anything I can, especially alcohol. But it doesn’t distract from it for long. I have no purpose. There is nothing to do. I’m debilitatingly bored but I don’t have the motivation to do anything, and if I did I’d soon get annoyed and irritated. I’m lost. This is how it feels. Death of the self. Like my personality has been deteriorating for years and now it’s gone. RIP. I’m a hollow shell of a person. A walking empty vessel. No expressions. Just a lack of everything that makes one human. I’m dumb. My memory is gone. What’s my reason for still being here? I’m also cripplingly lonely. I have very few friends. I prefer being alive in my dreams and it’s usual for me to have nightmares. I’m going to call my CMHTs ‘duty’ (the crisis team) tomorrow. I think I need some help. I’m not here.

I googled feeling dead inside. There were tips on how to cope. One of them was to make a feelings list, so I turned it into this blog post.

Fully vaccinated!

So although it’s only been about 6 weeks since my first jab, I got my second today! So I am now fully vaccinated! Woop! I had an extremely painful arm the next day with my first jab, so fingers crossed that it’s different with the second. I got the Oxford, AstraZeneca vaccine.

I have a close friend who is claiming to be an anti-vaxxer. I’ve not spoken to her about it, but I don’t think there will be much changing her mind. She can be very stubborn. This worries me.

I’ve got to concentrate now.. (AKA Shh!)

I am so alone. I live with my boyfriend who is studying for a PhD in bioinformatics 🤯 it’s STILL pretty much lockdown here in Birmingham (UK), so mainly my only communication with another human is with him.

We are ‘having problems at the moment’ (his words, not mine) so it can get quite hostile. There are two main rooms to our flat. The living area and the bedroom. So it’s hard to get space without going to bed. He gets annoyed when I go to bed.

I get a lot of mixed signals. One minute I’m being shushed because he needs to concentrate , and the next he’s apologising that he doesn’t pay me enough attention. My emotions are wrecked, I don’t know if I’m up or down normally, let alone in isolation with mr confused about how he feels towards me. Although, the majority of the time it is annoyed, angry and frustrated.

I have started to wonder if we are even right for each other… is he even happy being with me? I love him. But I want to make him happy, and I feel like he does not understand me (trying to live with my mental health issues) and I also feel like he never will. He is to logical, pragmatic and rational. Emotions ride me like a bitch. It’s not fun and I can not control it like he can. I feel like unless he has my experience he will never ‘get it’. He goes on facts, figures, experiences, lessons learned. I go by whichever chemical my brain is throwing at me… excitement for no apparent reason, crying over an advert, shouting swear words at the top of my voice because I dropped a tea towel, being physically unable to get up in the morning because I wish I was dead with depression after another nights worth of nightmares. The list could go on.

Basically, neither of us are happy. So what do we do now? We’ve been together for over 3 years. We know no different. When the tough gets going… do you battle though until the good again? We’ve gotten through rough patches before. But to be honest… I didn’t see it as a rough patch until he basically called it out this evening. Sigh.

Brave the shave?

I finally got a haircut today. The hairdresser I liked at the salon I used to go to went mobile so I booked her and she came to my house. Cut my hair in the bathroom. When she left I wasn’t happy with it. I wanted a more prominent undercut. Wanted to look more scruffy and punk, less neat/fringe-y emo. So it took me about 5 mins to decide to take the clippers to the haircut I’d only just had and spent £20.00 on. Thought I’d have a go myself. I’m happier. But still not happy. Was supposed to go t-total today, but I found beer in the wardrobe. Now I’m a pint can into drinking, sat in my bedroom on the floor, topless because the hair was irritating me, with half a shaved head that I can’t decide if I like or not. I’m tempted to shave the whole lot off again. Seems like such a waste of being unhappy with it for so long though. Maybe I should shower. I called the psych to speak to big-C on duty (the crisis team) but he was in a meeting. Reception asked if it was urgent. I said no. It could wait. They said call back tomorrow. Sigh.

Happy day

Woke up late this morning, I’m usually pestered awake by Dom, as he has a thing about being in bed past 12pm 🙄… I’m a lazy person. I like to sleep. This bothers me. But, recently (since we got the PS4) he plays FIFA on a Saturday morning – giving me a lie in.

I rolled out of bed afternoon time, and was feeling great! Just so happy! I couldn’t place why, but still, it’s all good! It could have had to do with the online test I completed in the tryout for a job with the DWP (Government’s Department for Work and Pensions).

Also, yesterday an ex colleague and friend got in contact about a job they have been made aware of by an ex employer of theirs… senior work coach that would earn a fortune! I have the skill set. She also said she’d put in a good word for me!! I’m so flattered! Totally applying to this ASAP! Never know! So I’m going for that too!

Just feeling a bit more hopeful about the future!

Got my Ray Bans sorted!

Boom!

Went to the opticians yesterday after booking an appointment the day before. They only bloody fixed them!! I’m over the moon. Wearing them right now! Got 2020 vision with these babies! Could not be happier! All the problem was, was the bend in the arms/frame. They just straightened them out and re-bent them to fit me. Perfect! So happy!

God bless the opticians!

Ray Bans FAIL

I’ve come to realise my new Ray Ban specs don’t fit me properly… granted – they are children’s frames, because my prescription is sooo thick and the less wide the frame is the less thick your lenses look (or so what I was told), they fit the width of my face, but not the length (eye to ear). basically, they just don’t sit right.

So there I was, really wanting to try out glasses instead of my contact lenses, maybe save myself a bit of money on the 24/7 contacts I wear at the mo and have a break now and then for my cool new specs – BUT NO! They were discontinued and in the children’s section, so I got them at a bargain price, but I’m really hoping if I call the opticians on Monday morning they will have the arms lengthened for me…

Then I can look like this!

BPD envy

My little bro is looking to BUY a house!! … Buy! Well, his girlfriend is at least – she’s the one with a job, (in a bank). I had a bit of a typical bitter BPD reaction when my parents told me they were looking for a property to buy…

Life is not fair. Everyone I’ve spoken to on the subject tries to tell me not to compare myself to others… ha. How do you not do that when everyone else’s lives are falling into place and mine is falling apart? When I try so hard to keep my head above water, working, where my brother hasn’t had a job in years, OR been on benefits, and now plans on buying (sort of) a house?!

Dom actually gets really mad at me for having this envy/jealousy towards other people who’s lives are working out for them. All the usual reasons – it’s not healthy, blah blah blah. Sometimes I just need to vent it though, and then I’ll get over it. For example… when I found out my cousin was having a baby I had a complete mental break down (over Christmas, two years back) and my bro and mom had to call an ambulance to deal with me. Now the baby is like 8 months old and it’s all fine. I still get pangs of jealousy as I (and the baby) age and I am still nowhere near capable of rearing a child of my own… let alone looking after myself. Fuck!

Anyway. I’m drunk right now and I’m coming to terms with my bro moving forward. As long as they don’t get pregnant before we do. That would just about kill me.

I LOVE MY MOM! (international woman’s day)

Today radio 6 woke me up as usual, informing me of world events alongside some good tunes. Today is International Woman’s Day… it got me thinking (there’s a lot of space to think when you’re unemployed), I thought about writing a post on topic, but couldn’t find my angle. So instead, I’m going to freestyle.

The first person and most important woman who will ever be in my life is my Mom. It’s only been in the most recent years (my late 20’s and early 30’s) that I have really grown to appreciated her for EVERYTHING she’s done for me and my little (now big) bro, and all she’s endured and sacrificed for us.

The more I thought about it being international woman’s day, the more I ended up thinking about my mom – so this post is dedicated to her.

I speak to my Mom almost everyday about nothing, somethings, anything’s and everything! This evening I text her to tell her that she is my hero. I am a bit depressed at the moment, and I got tearful in front of Dom about a memory that haunts me… Mom and I were in class learning BSL level 3 a few years ago, the topic of conversation in the group was ‘role models’, we each took turns to say a role model of ours, it came to my turn and I said “I don’t know?”, other group members laughed as my own mother was sat beside me and that would have been an obvious choice. I glanced at my Mom and she looked a bit hurt, but hiding it well, laughing along. I think I can accidentally be a real arsehole sometimes. It was just that (at that time) I didn’t believe in having a ‘role model’ as such. I’ve grown up a lot since then. I’m less of a twat.

My Mom loved my message, she told me she went for a walk in the park today and got talking to a grandmother on the way home, in her message to me, Mom talked about the woman:

“She said about her daughter when she was growing up ‘I never thought that we would be best friends’, but she said ‘we really are’, it made me think about us and how we are best mates, I had never thought of it before?” – My Mom

She’d made me realise it too -my Mom is my best friend. If ever I have any news she’s the first person I call. When I’m bored (however sick of me she must get) I phone and she answers. I love that woman. I have two main people saved in my phone as emergency contacts, my Mom and Dom.

I texted her back confirming we’re best friends forever! (Complete with tears streaming down my face – like I said, I’m a tad depressed and the slightest thing can set me off at the moment).

Understatement… shit, I was balling! There is too much emotion for me to comprehend, to handle. I thought I’d never be able to stop crying. The love, the pain of the future loss, the guilt of not being there when she’s needed me in the past. Everything. I’m a big upset mess at the moment. I’m due my depot injection tomorrow, think I’m going to enquire about upping the antidepressants. ANYWAY!

This has been a good post, I feel I haven’t had to delve too much into my upbringing to show you how much my Mom has done for me and my brother. However, I will say, she did above and beyond as a single parent to give us both more opportunities than she could have ever dreamed of when she was a kid. If a mother supports and provides for their child/children then my Mom is the best in the world.

I love you Momoo!

It’s a… No.

Woke up this morning in a cold sweat (which is becoming the norm) following nightmare-ish stressful dreams. Decided not to move for a few hours. Didn’t even check my phone (almost like I knew it would be bad news). When I eventually peeled myself out of bed, popped my pills and checked my emails there it was… the ‘sorry but you have been unsuccessful’ email from my old job. I was so emotionally fucked by it that I didn’t react. Didn’t cry, didn’t even sigh. I think I’m broken now. How far I have fallen… I can’t even get offered my own job back from a charitable company that work closely with disabilities. My mental health issues clashing with work was too much for the company to handle. They knew they couldn’t sack me, so they waited until my contract ran out and then did everything they could not to re-hire me. Too much trouble for them to deal with the personality disorder.

There was another notification on my phone. A missed call from my GP surgery. I called back and they booked me in to have my COVID-19 vaccine tomorrow! I was shocked. I’m only 32. I read online the other day that doctors practices are now giving the vaccine to the severely mentally ill. I guess that’s me. Mental illness stops me from working yet gets me a VIP ticket out of the pandemic risk?… it’s swings and roundabouts.

I’m pretty messed up at the moment. To be honest, I don’t know what is keeping me going. I wake up to wait to go back to sleep. The days are empty. Boring. I have no motivation to occupy myself. I try to force it, for my boyfriend’s sake. He’s working his arse off 24/7 doing his final year of his Bioinformatics PhD. While I rattle around the house with a blank look on my face. All I have to look forward to is getting fucked on the weekends. Even that has it’s downfalls, the inevitable dreaded hangover until the next drinking session. My hangover was so bad last weekend I actually puked. I’m 32.. I should not be binge drinking to the extent I puke due to been hungover. Buuuut, I’m unemployed and depressed. I know I’m not helping myself.

At what point do I give up? I’m not allowed to be on work related benefits, rent, food, bills, still have to be paid for though… my Mom is helping me out where she can, bless her, she’s been sticking a few hundred quid in my account once a month – which is lovely of her but makes me feel like shit. Again, I’m 32… I should not be sponging off my mom. Ugh. I need a job, I need my own money.

In the back of my mind I’ve started to weigh up the likelihood of me getting a job in the current climate, and whether it would be worth applying for disability benefits. I know I have enough going on to qualify. I think that’s a discussion I need to have with Dom. I would hate for him to think I’m a waster, I want to work, and I will! But how soon… I just don’t know.

Overweight

Yep, I am in the overweight category according to the NHS’s BMI calculator… My past self would be discussed to learn I weigh 11 stone and that a size 12 is too tight. My past self of course had an eating disorder and was in a size (UK) 6/8. I might be fat now, but I’m a hell of a lot happier. However, I don’t want to be fat. I want to be healthy. So I’m going to do something about it…

I’m going to post an update on the first day of each month – so that it doesn’t consume my whole blog with weight-loss content and I don’t get obsessed. this is me right now:

They don’t want me!

The other day I had a phone conversation with my manager from the job I’ve just been made redundant from. I’d been owed this phone call for about a week but he’s a busy man, I understand. I’d had to politely remind him by text several times to give me a ring. The idea was for him to give me some feedback following the two interviews I had (via Zoom) to be redeployed in the company (that I was unsuccessful in), but we didn’t really touch upon that at all. Instead he asked about what new job opportunities I’d been looking at elsewhere, and started suggesting where else to look – despite vacancies becoming available there, where I’ve worked for the last two years… I asked about my chances of coming back if I should happen to apply for these new roles, and to my slight confusion he seemed to deter me from applying, putting me off with info about another colleague stepping in and likely to get the job etc. I just got a very strong feeling that they don’t want me back.

I know I haven’t been the easiest of employees to work with, due to my mental health conditions, but I like to think that I’m a hard worker who gets results, and that my managers had come to look past my (MH) disabilities… but clearly they had had enough. I actually felt that this was the case earlier in my employment, after been given an initial warning, followed by a disciplinary and then the threat of a second disciplinary -all of which I felt were unfair and unfounded considering my personal situation and complex needs. I saw an occupational health therapist for a ‘fit for work’ assessment after my managers called for it and HR made the referral, (around the time of my disciplinary). I was deemed both fit and unfit to work, depending on my fluctuations in wellness -which I’d already told them about and explained a hundred times that this was unlikely to change. I experience massive and extreme mood swings on a daily and monthly basis, from manic dizzying highs to debilitating crippling depression, and I am rarely in a stable state of in-between. But, I battle on! Every single day. I try so hard. Many people with problems similar to my own are (quite terribly) classed as ‘revolving door patients’ by care professionals, in and out of psychiatric hospitals their entire lives. It’s actually quite amazing how ‘functioning’ I am with everything I have going on.

I am quite upset that the company I worked for don’t want me back. I feel like my contracts ending was the perfect way for them to get rid of me for good. I feel like I was set up to fail in my redeployment opportunities, especially with the wording of one particular interview question… anyway. I need to move on now. I think if the company are not willing to stick to their reasonable adjustments to cater for my needs in a fair and equal way, then I’m better off not working for them.

Happy Wednesday

Feeling way too positive today… I’m not used to it…

After a completely sleepless night (one before last), last night I went to bed at 10pm and set my alarm for 7am. I fell asleep with a strong determination to get up when my alarm told me to. And guess what… -I did! I just -got up! If you knew me, you would know how unlikely it was for that to actually happen. I started the day perfectly; came down stairs, had coffee, flicked on the morning news programme, ate a healthy breakfast, had a shower, got dressed -in ‘daytime clothes’ not the usual half and half combo that has become the norm over lockdown of comfortable pyjama bottoms with t-shirt and hoodie, using the excuse that there is no real need to leave the house. As a matter of fact, at breakfast I used up the last bit of cereal in the bag (granola if you want to know), so I decided to go out to the shop to get some more. A nice cold morning walk up the road in the fresh air to the local convenience store. Dom came with me. I woke him up an hour after I got up and we were out the house just after nine.

I tried to explain my current feelings to Dom as we walked… I feel as though I’ve had a near death experience and woken up the next morning thankful to still be alive. The kind of feeling where the grass looks greener, you notice the birds singing, food tastes better. Basically, I think I might be happy. right now, this morning, despite everything going on – I am happy.

Maybe the new antidepressants are working after all. It’s kind of a good job I didn’t ring the psych team yesterday like I wrote that I would, to complain that the drugs aren’t doing anything.

Maybe this happiness is a bit too much? But don’t get me wrong, I’m not complaining. I’m just a bit weirded out by how drastic of a change my mood has gone through overnight. They always say things will be better in the morning, but they never usually are.

So, December 1st, lost my job…

What did you get for Christmas? …

I just kept thinking, where’s my Christmas miracle… y’know? I interviewed for two separate redeployment opportunities but my co-workers got the roles. There wasn’t enough to go round. Reminds me of being picked last to join a team of basketball in senior school.. fucking sucks. At least in school it didn’t effect how much money we have to live on! Being an adult is waaay harder.

I haven’t slept tonight. It’s 6:00am now, so I just got up. Dom and I argued last night. It was a serious one. Came close to the end of our relationship… there was a lot of shouting, slamming things, tears (on my part), it was a mess. I really need to sort my life out. It’s crumbling away, and I’ve worked so hard to get to this point. Depression wants to beat me again, but I’m not going to let it. I’m going to phone the psych team at 9:00am, tell them the new drugs aren’t working on me yet.

Basically everything at the moment is a wake up call. And if I don’t make some big lifestyle changes I’m going to be back at square one, for sure. I don’t want to choose the easy life. I want the good life. And that comes with hard work.

I’m going to spend the next few hours working on my CV and looking for jobs. If I could get a new job to start in January, that could be a real turning point. A fresh start. No horrible reputation of mental health days off sick, or being late because I couldn’t drag myself out of bed. A clean slate. New people. Yeahh.. that would be nice.

QCT… Every heartbeat…

I had an ECG (like a heart rate monitor reading) last Thursday. They usually just take three readings, but for me they took four because it kept showing a long QT (whatever that means)… before I left the nurse said “I have to give you some advice before you go, because your QT levels were high… if you go light headed or get any chest pain call for an ambulance…”

The next day I was at work in between appointments and I got a phone call from my psychiatrist who had just reviewed my ECG results. She was calling because she had concerns about the high QCT readings. She said a normal range goes up to 170 and my highest reading was 195… antipsychotic meds can make this happen apparently, so she has decreased the dosage of my monthly depot injection of Flupentixol from 50mg back down to 40mg… if that IS what’s causing the high QCT then it should show a lower reading in a next follow up ECG in three/four months time. Hopefully I’ll be able to remain stable mentally until then… and still have a beating heart!

However, if it’s not down to the Flupentixol, then I might have an underlining heart condition that will need investigation and stuff, because a high QCT level can be quite serious apparently. Like… your heart can just stop…

Apparently the QCT level is the time it takes for your heart to start beating and stop beating on each beat. I’ve had bradycardia (a slow heart rate) for years, ever since my first ECG showed it up back when I had an eating disorder a million years ago, it feels like.

But not sure about this……..

So yeah… not good…

I am such a lonely fucker… I’m at the pub by myself, as per usual. Texting the handful of people, ‘friends’ (mainly family..) in my phone book for a bit of conversation, but everyone is too busy. I think I’m getting depressed…

Cried my eyes out for hours last night in bed at the thought that everybody dies… My Mom and Dad will die, by brother and boyfriend will die, everyone I know will die. I can’t handle it.

People are starting to look fragile to me again. I’m drinking more and spending more time in bed. These are all my warning signs. I’m irritable and then feel guilty about being that way. And I’m mourning the loss of good times before they’ve even happened. It’s my birthday soon. I’ll be 32.

I forgot about being thirty one.

Belly

So, my health is a bit all over the place at the minute …after being on a low dose of antibiotics for three months straight, the moment I came off them (well, two weeks later) I had another bladder infection! What’s the deal with that?! I’ve got a blood test tomorrow morning, so hopefully that will shed some light. But the Drs seem to be a bit baffled.. my urine shows leukocytes (white blood cells – so likely an immune response) when put to the ‘dip test’ and sometimes there is presence of blood, but not always a bacteria when they test it in the lab. Basically something is going on in my guts and it hurts, but they don’t know what. I’ve had ultrasounds, a cystoscope and a CT scan – they found kidney reflux in an ultrasound and damage to my bladder wall with the cystoscope but said it was because of the multiple infections and would fix it’s self while I’m on the the three months antibiotics. I’m on daily laxatives now to rule out constipation adding to things (but they are not really reLAXing things, if you know what I mean…). I’ve been branded as having IBS in the past too, there has been similar tummy troubles for years, they thought after ruling out my womb that it could be my bowels. Blood found in poo, various tests for cancer etc. but no -thank god of course. But now my bladder maybe? We still don’t know what’s going on in my belly… I’ll keep you posted.